Abstract:
Introduction: Sickle cell disorder is an autosomal recessive condition,
in which inheritance of an affected gene from both parents
results in a disorder. SCD is more prevalent among the socio- economically
disadvantaged and medically underserved communities
mainly in Tapi District of Gujarat.
Objectives: 1.To study Awareness Regarding Sickle Cell Disease
or Trait among the affected 2.To find out the association between
the awareness level and the socio-demographic profile of the subjects.
Methodology: Descriptive Cross-sectional study was carried out
in Janak Smarak hospital in Vyara Town, Tapi District, for a period
of one year and minimum of 75 persons with SCD and 150 persons
with SCT were taken for the study.
Results: The overall Knowledge regarding disease was averaging
only at 15 %. The categorization of subject having “Good” or “Not
so good” among the subject were predominantly poor with a majority
of them showing Not so Good condition (84%) whereas only
16% showed good Knowledge.
Conclusion: The overall Knowledge regarding disease was averaging
only at 15 % which showed that the awareness seems to be
grossly deficit even among the affected. It hence shows that the
counseling of the disease among the affected was not adequate. So
Counselling & IEC can play a very important role to eliminate the
disease from the community.